Unfortunately we have seen no improvement in Alfie’s presentation, he still continues to have clusters of seizures every seven to ten days sometimes less.
Weve now moved his complete care to Oxford Children’s Hospital and we have an amazing doctor who is extremely supportive.
He has tried some other treatments for Alfie but unfortunately nothing has helped. The only medication that helps him is steriods and if we continue to use this drug so much Alfie’s out look could be bleak.
We are now making plans to go to Holland to start medical cannabis treatment. We need to raise as much money as we can to enable us to stay there for as long as possible in the hope that this treatment will work for Alfie.
Thank you for your continued support and love. Together we will make Alfie well. Xxxx